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Dementia

Dementia

Dementia is an umbrella term for progressive degenerative brain syndromes which affect memory, organisation, language and communication, movement, motor functions and other thinking abilities that affect a person’s daily living.

There are several types of dementia, including:

  • Alzheimer's Disease
  • Vascular Dementia
  • Parkinson's Disease
  • Lewy Body Dementia
  • Frontotemporal Dementia
  • Huntington's Disease
  • Normal Pressure Hydrocephalus
  • Creutzfeldt-Jakob Disease
  • Korsakoff Syndrome
  • Mixed Dementia

Although challenging at times, people with dementia can live well with adequate support systems that focus on their wellbeing and that of their care partners / caregivers. 

Resources

*Note: Resources linked are in English and pdf or webpage format, unless stated otherwise.

 

Status Report and Fact Sheet

Fact Sheet on Dementia by Sharifah Tahir, Emily Ong & Yuenwah San

– available in accessible pdfwordepub and html

Global Dementia Observatory by World Health Organization (WHO)

– Global action plan on the public health response to dementia 2017-2025

– Global status report on the public health response to dementia

Reports by Alzheimer's Disease International, including World Alzheimer Report (from 2009 to the latest)

 

Living with Dementia

The dementia guide: Living well after your diagnosis by Alzheimer's Society, UK

Our “Top Tips” for living well with dementia by The Scottish Dementia Working Group

Post-Diagnostic Resource by The Scottish Dementia Working Group

Dementia and Sensory Challenges by The Scottish Dementia Working Group

The lived experience of people with dementia by Romayne Gallagher

 

Supporting Dementia

Caring for a person with dementia: A practical guide by Alzheimer's Society, UK

‘Nothing Ventured nothing gained’: Risk Guidance for people with dementia by Jill Manthorpe & Jo
Moriarty for Department of Health, UK

Supporting Dementia Self Advocates: A Directory of Resources by Dementia Alliance International, 3 Nations Dementia Working Group & Alzheimer’s Society

 

Dementia-friendly Environment

Dementia-friendly environment checklist by Alzheimer's Society, UK

Dementia-friendly environments: Noise levels by Social Care Institute for Excellence (SCIE), UK

 

Language Guidelines

Dementia words matter: Guidelines on language about Dementia by The Dementia Engagement and Empowerment Project (DEEP), UK
Dementia Language Guidelines by Dementia Australia

 

Other Resources

Designing to Include Dementia & Personhood by Ron Beleno, Jennifer Boger, Arthena Caston, Luna Kawano, Jennifer Krul, Roger Marple, Jay Reinstein, Tynan Sears, Mack Wilson

Engagement of people with lived experience of dementia advisory group and cross-cutting program: reflections on the first year by Ellen Snowball, Rosette Fernandez Loughlin, Heather Eagleson, Karen Myers Barnett, Emily McLellan, Denis O’Connor, Catherine Kelly, Christine Thelker, Katherine S. McGilton & Jennifer Bethell